A mother’s story of identifying autism early, navigating therapy, school inclusion, and stability. Practical lessons for parents on advocacy and support.
Introduction: Why This Story Matters to Parents
Every parent hopes to understand and support a child’s unique development. Surabhi's two-decade journey, from early signs of autism to higher education, offers a real, practical roadmap for parents navigating the unknown. This story is about love, resilience, and the power of timely action, the right support, and stability. It helps parents recognize early warning signs, advocate for interventions, and plan for school inclusion and adolescent transitions with confidence.
Background: A Loved Child, A Sudden Change
Surabhi was born in 2002 to parents Sunitha & Vaibhav who had already lived through the grief of miscarriage. Her arrival brought deep joy and hope. In the early months and years, her development appeared typical. There were no immediate red flags, no missed milestones or glaring concerns. Like many families, her parents felt reassured by “everything seems fine,” and life moved forward.
Early Warning Signs Around Age 2
As Surabhi approached her second birthday, something shifted. Her mother Sunitha began noticing distressing changes that didn’t fit her earlier patterns:
For many families, the second year is when subtle neurodevelopmental differences begin to surface: language plateaus, social disengagement, rigidity around routines, or prolonged distress around transitions. In Surabhi's case, the loss of verbal communication paired with escalating irritability signaled a need for closer evaluation.
When Concerns Are Dismissed: The Hardest Early Barrier
Surabhi's parents sought medical advice, only to meet the all-too-common “wait and see.” Dismissal is painful. It delays intervention and undermines a parent’s intuition. If there is one lesson parents can carry from this part of Surabhi's story, it is this: trust instincts and keep asking for answers. “Wait and see” can be replaced with “screen and support.”
The Breakthrough: A Watchful Principal and a Clear Diagnosis
A family move to Noida became the turning point. A perceptive playschool principal carefully observed Surabhi's behavior in a natural setting, transitions, social interactions, responses to sensory input, and encouraged the family to consult clinical psychologist Dr. Sawant Kumar. The diagnosis, autism with developmental delay, was devastating at first. Grief and confusion are normal. What matters is what happens next: channeling that grief into action.
This is where Surabhi's parents transformed as advocates. They asked questions, looked for specialized resources, and didn’t stop at the first door.
Early Intervention: Finding the Right Team and Approach
Therapy is often expensive and can feel impersonal. The family initially encountered interventions that didn’t fit Surabhi, services that were available but not tailored. That changed with Action For Autism (AFA), an NGO well-known for autism support in India.
AFA provided paediatric therapies, a dedicated special educator who understood her learning profile, parent coaching and guidance on routines and communication. Under this guidance, Surabhi began taking her first steps forward, both literally and developmentally. For many families, this stage is about building a foundation: predictable routines, visual supports, functional communication (even if nonverbal initially), and sensory-aware environments.
The Cost of Instability: When Life Circumstances Interrupt Progress
Financial pressures led to a move to Africa. The impact was immediate: regression. For neurodivergent children, consistency and predictability are crucial. New environments, different languages, school cultures, healthcare access, can disrupt progress. This chapter taught the family a vital, enduring lesson: stability is not just helpful, it can be essential.
They returned to India and began restoring the supports that worked. Here’s a practical insight for parents planning moves:
The Right Educator Changes Everything
Back in India, a special educator from AFA, lovingly known as Sonam Ma’am, became a keystone in Surabhi's growth. The relationship between a child and a special educator can transform learning. It is about patience, consistency, and trust.
But life called again. Another international move, to Congo this time, disrupted the momentum. The pattern repeated, reinforcing the importance of environment and continuity. When they resettled in Faridabad, the family focused carefully on finding a school that could include Khushi with dignity and real support.
Finding the School That Says “Yes”. After many attempts, Legacy School in Gurgaon accepted Surabhi. This one “yes” created a path that many parents hope to find. Her inclusion journey began with integrated activities, then gradually increased to full mainstream academic placement by fourth grade.
Effective inclusion looked like:
Academic Success, and the Social Curve of Adolescence
Surabhi excelled academically without tuitions. But adolescence introduced a new frontier. Puberty overlapped with deeper mainstreaming, just as friendships get more complex. She had supportive teachers yet still experienced social isolation. This is common for autistic teens. Academic success does not automatically ensure social belonging.
What helped:
Higher Education and Independent Functioning
The pandemic impacted the family’s original plan for Canada, but Surabhi charted a new path, enrolling at American University of Sharjah. She completed a Bachelor of Science in Multimedia Design, handling logistics independently, a major milestone in executive functioning and self-advocacy. The Vice Provost recognized her achievement with a formal letter of appreciation.
For parents, this phase often includes:
What Parents Can Learn from Surabhi's Story
A Practical Guide for Parents Starting This Journey
Closing: A Story of Strength, Stability, and Self-Belief
Surabhi's journey is not a straight line, it is a spiral forward. Through early warning signs, a clear diagnosis, carefully chosen interventions, and the unwavering commitment of her parents, she built the skills to learn, adapt, and succeed. Stability and the right people at the right time made the difference. For every parent reading this: progress is possible. Start with the next right step, observe, act, and build a circle that believes in the child as much as the family does.
Note: The narrative above is based on a parent’s publicly shared experience; details have been structured for clarity and parental guidance.
